Ride Ataxia; to raise awareness on debilitating disease
A terrific video and profile from WGN in Chicago of Kyle Bryant, a hero in the Friedreich’s ataxia community for the work he has done and is doing to raise awareness and funds for research.
World MS Day 2014 in Ireland
Tomorrow, May 28, is World MS Day.
Photo ©Naoise Culhane
Wednesday, May 28thisWorld MS Day. All over the world, people will organise events, wear orange, volunteer, work and/or attend conferences to raise awareness about an illness that so far, still cannot be cured.
While 2014 is the ‘European Year of the Brain,’ this year’s World MS Day theme is ‘Access.’ Whether this means access to information, medication, support, buildings, rights or services, somewhere near you people with MS, their families and MS societies will step forward and express their need for more awareness, understanding and hope that one day, MS will be eradicated for good.
Until then MS societies, in many cases, will continue to be the first point of contact after a possible diagnosis or for continued support. To ease physical, mental and emotional symptoms, local MS societies work hard to cater for people with MS, their families and their carers.
According…
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One Moment in Bob Dylan’s 73 Years
Bob Dylan turns 73 today.
On February 20, 1991, Dylan was handed a Grammy “Lifetime Achievement Award” (will they grant him a second one in a few years? the man is still working) by Jack Nicholson. The First Gulf War was underway and there was no threat of protest or off-message anti-war messages from the show business crowd attending. (That war went very very well, if you recall.) So Dylan and his band played a violent version of his song “Masters of War,” sadly unrecognizable from his unpunctuated singing—would that he had enunciated the lyrics, but Dylan does not do the obvious even when he does the obvious—and then he accepted the cheap plaque (in the clip it looks like something the Grammy people bought at a Kinko’s) and delivered a brief speech:
“Well, my daddy, he didn’t leave me much, you know he was a very simple man, but what he did tell me was this, he did say, son, he said.” (There was a long pause, nervous laughter from the crowd.) “He said so many things, you know? He say, you know it’s possible to become so defiled in this world that your own father and mother will abandon you and if that happens, God will always believe in your ability to mend your ways.”
It took him less than a minute, even with his nervous hat fumbling and pauses, but Dylan had just delivered an Old Testament sermon from Psalms 27:10 about the disfigurement of a life spent enslaved to the material things to the bejeweled, genially war-applauding, Hollywood crowd.
