Spinal muscular atrophy

I’ve Always Depended on …

Posted on by Mark Aldrich

Angry, barking angry. “Ass-hat angry,” neither of my grandfathers would have called it, because neither of my grandfathers ever said “ass-hat.” The kind of angry that both of my departed grandfathers in the hereafter would have been forced to come up with pretend back-country colloquialisms to describe their grandson, also known as me. That frustrated and angry.

The story has a happy ending, of course. And the anger departed the moment it was expressed at the anonymous Newark-ian who knocked me over. It was a night in which Jen and I discovered that there are no short-cuts on the path to meeting good people.
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ALS, SMA, and Nice Ice

Posted on by Mark Aldrich

Each one of us is a part of an interest group. This does not mean each of us must carry out the duties of being an official representative of said interest group, but, for example, I might be the only Jewish person you know. As such, I try to be a good guy and hope that this represents good things.

(I have been that one before, actually—when I lived in the Midwest—and I had some fun with it. Not that there are zero Jewish people in Iowa, there are, but one couple that I got to know had not met one or they claimed to have not. Which makes me a member of yet another special interest group: I may be the only Jewish person you know who was the first Jewish person someone met or said that they met. Life is full of milestones.)

I am male, middle aged, half-Jewish, half-Baptist, an alcoholic in recovery, tall, thin, and I have a disease that is disabling me. It is spinal muscular atrophy, type 4. Do any of these things merit me tapping on your shoulder and requesting attention from your charitable impulses? Or your attention at all?
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My Mentor, My Duck; Five Photos, Five Stories

Posted on by Mark Aldrich

Can a duck be a mentor? To creatures other than other ducks?

If you are reading this on a Windows browser, there should be a logo on left side of the tab at top, a little green-brown-yellow blob. I first placed it there as an inside joke with myself, but the story is worth sharing. The full-size photo is at the top. (Most of this first appeared in a post from December 2013, “A Duck About Town.”)

It is a photo of a duck. My mentor.
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