Rare Disease Day 2014

International Rare Disease Day is February 28, 2015. Here is my column for last year’s RDD. There will be more this month. Thank you for reading, Mark

The Gad About Town

One friend has antiphospholipid antibody syndrome, which causes blood clots to form in any blood vessel in the body and leads to transient ischemic attacks (TIAs), or what she cheerfully refers to as “mini-strokes.” (Most people who have recurring TIAs call them mini-strokes; my friend has the happy quality of coming away from hers with anecdotes about the experience that make them almost sound like something I want to have, too.)

One of my closest friends has fibromyalgia, a disease of chronic pain with a “here today, gone tomorrow, here again and worse” pattern-less pattern of symptom presentation that sometimes renders her almost breathless with the pain. Everyone experiences physical pain, but a full-body stabbing pain with no traceable cause, and thus not many ways to treat it?

Other friends have multiple sclerosis, one whose symptoms are affecting his balance and control of his legs, and one whose hands are…

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2 comments

  1. EvanMather · February 2, 2015

    Shouldn’t “Rare Disease Day” be on February 29th?

    Liked by 1 person

    • Mark Aldrich · February 2, 2015

      Well, not this year … if there are still rare diseases next year, it will be on Leap Year William Day, I think.

      Like

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