Getting Better, One Day at a Time

A friend told me about eating out with her “sarcastic” friend—we all have one—when they saw a toddler, bundled up in winter layers, bounce off a closed glass door and fall because the child had not perceived the door.

The sarcastic friend said, sotto voce, “Get used to that, kid.”

Life is a clear, freshly cleaned, plate glass door that no one notices is a door, even with a shiny metal door handle at every-door-you’ve-ever-seen’s-door-handle-height on it, because we are too busy thinking about life until someone bonks into it. Loudly.

When are we too young to learn that? or too old to be reminded?

I bonked into my own life, repeatedly. Another friend has an analogy: Whenever he lived like he thought he was the “captain of his own ship,” he would run it aground, back it up, direct it in what he thought was a new direction, fire up the engines and re-launch full speed ahead, only to find that it was not a new direction at all and he had re-grounded it in the same spot, but deeper in the muck.

Ten years ago, my SMA symptoms were probably beginning to manifest themselves but I was still walking everywhere, and even if I did notice any changes I was not someone who was going to say anything out loud about them to another human being. I had terrible leg cramps. My right leg would spasm out from under me if I stood still for long, but it had done that for years; my reflexes would catch me and pop me back into place. That happens to everyone, right? I fell in my own apartment, a single-level, one bedroom, hard-to-fall-down-in apartment and twisted that ankle sometime in 2004. SMA? or something else?

It is possible it was my leg misfiring, a neuromuscular something-or-other, as well as something else. In 2004, I was still active in another disease, alcoholism; that stumble that I mentioned is not something that I actually remember as I was in a brownout that night, an ambulatory blackout. I remember awaking in pain and with a foot too swollen to put a shoe on it. Ice and aspirin and I was fine within days or never.

AA_Anniversary_Medallion_Cobalt_BlueHad my alcoholism not gone into remission four and a half years ago through a lot of work, I would not: be writing; know about SMA; know that I was born with SMA; or be walking at all, probably. I would not have the income that I have (Social Security Disability), which is a very small stipend but it is regular; I would not know eighty percent of the people I now call friends; I would not be in the relationship that has outlasted the few relationships I had ever adventured my way into and out of over the years.

I would not be walking because I would not know what was happening, would not have complained to anyone, much less a doctor, and probably would be on a walker by now instead of a cane. I would have silently suffered with a fear that my condition was one I “had drunk myself into,” which would probably frequently be a thought immediately preceding another guilt-riddled binge. (SMA is a genetic disease, and its symptoms would have appeared when they did even if I had been a teetotalling professional athlete.) When I was active, I liked feeling bad, feeling guilty, feeling self-pity, even, because I liked the relief for those feelings that I had in a bottle. I enjoyed feelings, good and bad, only insofar as I could suppress them.

Alcoholism is a disease, a psychological and physical one, in which craving supplants all emotions and that emotion directs all actions. All addictions seem to share that simple self-centered rule and draw vitality from this circular emotional logic. The solution is simple but difficult; for me it involved getting involved with life, doing for others, with others, and noticing that I am not the center of the universe and that you all are not my creations, figments of my imagination. The trick was getting me to want that, to notice that I did not know or had forgotten all this.

About ten years ago, maybe eleven, I tried to contact my future self, the 2014 edition of me with several years of sobriety. I called the A.A. hotline and some nice person listened to me for a bit and then he told me he would get me in the morning and bring me to a meeting. I of course did not go. The first step in recovery is to admit “we were powerless over alcohol—that our lives had become unmanageable.” I knew my life was becoming a wreck already, even with a good job, but … I knew nothing else. Ten years ago I was on Step Zero—I knew that MY life was wrong somehow—but I did not come into recovery until 2010; I do not wish those six years on anyone, even people I detest.

I do not wish SMA on anyone, even people I detest, too. The beautiful thing about bonking into real life is that the best people I know are alcoholics and addicts taking their recovery seriously and people with neuromuscular diseases—like SMA and SCA and Friedreich’s ataxia—people who expand their lives and their possibilities even as their boat changes course on them and coach me to do so, too.

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The WordPress Daily Prompt for November 15 asks, “Present-day you meets 10-years-ago you for coffee. Share with your younger self the most challenging thing, the most rewarding thing, and the most fun thing they have to look forward to.”

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No Time. Too Loose. Or, Time’s Mulligan

Nothing is perfect, except for the perfect things. It does not take a precise 24 hours and zero minutes and zero seconds for the earth to complete one spin on its axis; it takes slightly longer, but not so much longer that you could even call it a “tick.”

The earth’s rotation is only a tiny fraction of a millisecond slower than what we otherwise call a day, but these partial seconds add up. Twenty-five times since 1972, the international bureau of standards that handles time issues has added a “leap second” to all of our lives. The last year with a leap second was 2012, so if that year felt longer for you, there is a reason: It was. By one second. Clocks everywhere could have read “11:59:60” at midnight the night of the leap second, but they did not because no one makes clocks that do that.

If it was not for those leap seconds—and, every four years, leap days—our clocks and calendars would slide and slip all over the place compared to what they are measuring; if not for leap days, eventually New Englanders would be confronted with a frigid July and the dog days of December, and vice versa for the Southern Hemisphere.

What our clocks and calendars are measuring is perfect: a year is X number of seconds, days, months, but not the same every year. The earth’s orbit is regular and perfect, but not 365 days every year. It is almost 365 days, and a day is almost exactly 24 hours in length, and we live with the compromise we call clocks and calendars. The ancients came as close to exactly right simply from observation as they could—to within seconds.

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No one is perfect, except we are each of us perfect, perfectly ourselves.

The clock makers and the calendar printers, heck even the bureau of standards that decides how to measure things, regularly make adjustments to the ways we mark the passage of time. Everything, even time, needs a semi-regular do-over, a mulligan.

(The mulligan is a very specific rule in golf—a rule that does not exist in a place called reality—which states that “sometimes rules do not apply,” so do-overs do exist in the universe. Of course, my friends and I found ways to bend even this non-rule. In informal golf, friendly noncompetitive golf between or among noncompetitors, if one hits an egregious drive [if? when, in my case], a drive that everyone agrees there may be no recovery from, everyone might also agree to grant that player a do-over. That is a mulligan. He or she does not get another one for the remainder of the day, even if the mulligan, the replacement shot, was worse or if an even worse drive came off their club later on. My friends and I came up with the “retro mulligan,” in which a player kept his or her mulligan in the bag if the do-over was a worse shot. That was our contribution to the world of golf and the world of do-overs, and it was super-secret, I think. Maybe I will take a mulligan in tomorrow’s column. The “retro mulligan” was the only mulligan that a player truly had only one of, and using it erased it and the mulligan.)

As an idea, the mulligan is forgiveness from the universe, a creative admission that there is a better version of what you just did still available in you. There is a better version of you. The retro mulligan concedes that sometimes we grab a do-over prematurely in life. There is a saner version of a better version of you.

I have a perfectionist streak that I am striving to lose, because I can not be the best version of myself by placing perfect in my path. Perfectionism leads to procrastination, then paralysis. All those leap seconds and leap days, I needed every last one of them to get to where I am today. And I expect I will need every leap second and leap day yet to come, because I am keeping the retro mulligan in my golf bag of life. Every second counts, yet there is no time to lose.

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The WordPress Daily Prompt for October 13 asks, “Good news—another hour has just been added to every 24-hour day (don’t ask us how. We have powers). How do you use those extra sixty minutes?”

Daily Prompt: For Crying Out Loud

I’m a damn sap.

Sometimes it’s the television ads. There are some that get me every time. “Aw, they’re getting a new kitten!” (Never mind what the ad is selling.) Or if a character in a movie—at any point in the movie—says something about wanting to “go home,” and at the end of the movie they walk through their front door and say they’re “home” and the music swells and the credits start rolling, I’m a goner.

In most every movie, the emotional climax comes with a montage of clips from earlier in the film, bringing us up to date and sending us along with the hero towards the repercussions of their fateful decision that will save the world, or their relationship, or their job. Or the emotional climax comes when the hero, who has felt apart from the world for so long, at least the first half of the movie, walks down a crowded street and espies happy couples and children and watches all the little things of life that he or she has been missing out on for so long.

Here’s that precise scene in the movie, “A Thousand Words,” an Eddie Murphy vehicle that did poorly at the box office:

I may hate the film, I may despise the performances, I may have been on the edge of my seat about to walk out from the first minutes, but these predictable, tear-jerking scenes will always do their work on me and jerk some tears.

Ceremonies get me, too. Graduations. Weddings. Funerals. Thus if a movie would depict a new graduate going home after a funeral, that might be the most teary-eyed you will ever find me.

So I guess if one would could combine these elements: advertisement and graduate going home, that would really get to me. That should be the topper, right? And indeed, the trailer, the ad, for “The Theory of Everything,” the soon-to-be-released film biopic about the cosmologist Stephen Hawking, provides us with an experiment for my theory. Yes, I have cried, well, teared up, watching this:

Worse, I tear up at the ends of things, whether or not they are tear-worthy. It could be a goofball comedy, but once the credits start rolling, I feel like I am about to lose it. Maybe I feel like we, the audience, are now graduating together from the experience of watching this movie together. Maybe it’s just me.

I possess a big, bright red EMPATHY button in my psyche, and most everything in the culture seems to stomp on it like it’s a cockroach at a square dance. I suppose I can blame my upbringing for installing this tear-jerk response, the fact that I can answer Yes to the WordPress Daily Prompt for today, September 5, which asks, “Do movies, songs, or other forms of artistic expression easily make you cry?” (Yeah, they do. They sure do.) It goes on, “Tell us about a recent tear-jerking experience!”

I had not cried for over a decade by the time I got sober in 2010. For years, I did not cry over anything that happened to me; neither professional, personal, or romantic success or personal, professional, or romantic failure moved me. I claimed, for the sake of getting dates, to be “in touch” with my emotions and “easily moved,” because I read somewhere that one ought to be and I thought that getting teary-eyed every so often counted. (Like many humans, I, too, possess ocular salt water in my head and it has to leave somehow, at least once every year or so.) Usually, when a famous ballplayer would retire, that would move me to tear up, especially when they were from my generation.

That Eddie Murphy vehicle that I showed a clip from, that bomb of a movie, “A Thousand Words,” broke my streak and my shell. The premise is clever enough: a typical rattle-mouth Eddie Murphy character is cursed and learns that he has precisely 1000 words left to speak before he dies. The longer it takes him to not get to words 999 and 1000, the longer he will stay alive. A tree grows in his yard with 1000 leaves on it and one leaf will drop for each word he speaks. When he speaks the last words, it and he will die.

The movie flopped because of the misfire of casting speed-talking Eddie Murphy in an essentially silent role, as his character continuously avoids speaking, but that question resonated with me: What will my final 1000 words be? (Uh oh, gonna tear up now.) When one is an emotional kindergartner, as I was in early sobriety, this is the kind of question that is going to feel vital and deep. Once upon a time, my last words were going to be, “I’ll have another” or “Can I crash here?” What will they be now?

I watched the movie with my girlfriend in 2012. I will not spoil its ending, even though it is easy enough to guess. But Murphy’s character’s last few words (of course the filmmaker frequently cuts to shots of leaves falling from an ever-barer tree branch) got me; I was gone. Tears successfully jerked, I was bawling like a kid. In front of my girlfriend. (She remains my partner to this day, a couple years later.)

Sometimes, even a movie you do not think will, can, or should do it will surprise you by being a real jerk.