Listen, Do You Want to Know a Secret?

Posted on by Mark Aldrich

The Atlantic Ocean. Each one of those tiny dots in the photo above is a person with a life, a voice, loved ones, losses. Sunburns.

We are standing, you and I, in front of the “Beach Hut” at Smith Point County Park on the South Shore of Long Island. It is 2014, one of the more recent years in history. For much of my adult life, I have sat here internally convinced that I do not like “the beach.” I do not remember when I convinced myself of this. I do not remember an unpleasant beach incident that convinced me that I possessed this piece of self-knowledge about my … self.
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Today in History, March 1

Posted on by Mark Aldrich

Super-soldier Steve Rogers and his vibranium shield were introduced by Marvel Comics in “Captain America Comics #1,” published 75 years ago today.

* * * *
Six Companies, Inc., the consortium of construction businesses that built Hoover Dam, formally handed control of the dam to the federal government 80 years ago today. President Frankin D. Roosevelt attended the dedication in September 1935, but it took months to work out the agreement over the control of the massive construction.
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‘Making Our Voices Heard’: Rare Disease Day 2016

Posted on by Mark Aldrich

Last year, when I wrote about Rare Disease Day, a friend asked, tongue firmly in cheek, “Why not have Rare Disease Day on February 29th?” I admit that when I learned about Rare Disease Day several years ago, after I was diagnosed with one, a similar joke crossed my mind. Each year, the last day in February is the date for International Rare Disease Day, and Leap Day, that quadrennial day, is a good one for us to remind the world that rare diseases are not at all rare.

Today, February 29, is International Rare Disease Day, and “Making the voice of rare diseases heard” is this year’s slogan.

Rare Disease Day was first established in 2008 by EURODIS, the European Rare Disease Organization. In 2009, the National Organization for Rare Disorders (NORD) in the United States joined the effort to educate the public.
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