Spinal muscular atrophy

My Shadow Knows Nothing

Posted on by Mark Aldrich

At once sarcastic and tender, W.H. Auden’s “The More Loving One” asks us to imagine a night sky empty of stars:

Looking up at the stars, I know quite well
That, for all they care, I can go to hell,
But on earth indifference is the least
We have to dread from man or beast.
 
How should we like it were stars to burn
With a passion for us we could not return?
If equal affection cannot be,
Let the more loving one be me.
 
Admirer as I think I am
Of stars that do not give a damn,
I cannot, now I see them, say
I missed one terribly all day.
 
Were all stars to disappear or die,
I should learn to look at an empty sky
And feel its total dark sublime,
Though this might take me a little time.— “The More Loving One,” W.H. Auden, 1957

I might very well like a starless sky and call it sublime or subtle in its black-on-black nuance, the poet declares, and not mourn the sight of a supernova, which is after all the explosive death of a star, and I may not notice the absence of one should it simply blink out, but in all matters, “If equal affection cannot be,/Let the more loving one be me.”

In all matters attracting my human attention, be it the night sky or my beloved’s face, let the more loving one be me.
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Take the Stairs

Posted on by Mark Aldrich

My least favorite cases are staircases. My least favorite ways are stairways. My least favorite air is a stair.

The photo above (not at all) accurately depicts (for reasons of comic exaggeration) what every staircase resembles in my mind’s eye. Including the one in my home. It is life with mobility impairment. Once upon a pair of teenage legs ago, I took stairs two at a time.

In 2012 my first neurologist, Dr. M, diagnosed me with late-onset Friedreich’s ataxia, or at least he reported that he felt I have a form of spinocerebellar ataxia (SCA), a disease that has dozens of forms and is genetic in origin.
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Oh! The Places You Won’t Go

Posted on by Mark Aldrich

Mistakes suck. Errors do, too.

Adverbs will never go hungry for a lack of work in many writers’ drafts, including mine, but that part of speech demands erasure whenever one encounters it. Adverbs are the empty calories of the English language: They are tasty, and they appear to be helpful when we want to bend a verb to do our verbal bidding and guide our eager reader(s) to share our thought-patterns, when context and the verb itself are capable of handling the task just fine on their own. They are potato chips and cotton candy blended into a linguistic smoothie.

All of the personal errors in my history can be described with an adverb, colorfully. Merely an adverb minus a verb or other details, so no personal stuff, no self-incriminating or embarrassing information might be revealed: complacently, awkwardly, abruptly, vigorously, languorously, braggingly, disgustingly, violently, wrongly. Timidly. Brazenly. Very. Many “verys” in there.
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