Mountains out of Steps

My least favorite cases are staircases. My least favorite ways are stairways. My least favorite air is a stair.

The photo above (not at all) accurately depicts (for reasons of comic exaggeration) what every staircase resembles in my mind’s eye. Including the one in my home. It is life with mobility impairment. Once upon a pair of teenage legs ago, I took stairs two at a time.

In 2012 my first neurologist, Dr. M, diagnosed me with late-onset Friedreich’s ataxia, or at least he reported that he felt I have a form of spinocerebellar ataxia (SCA), a disease that has dozens of forms and is genetic in origin.
Read More

A Healthy Sense of …

A friend used to say, “If everyone could throw their problems onto a table in the middle of the room and then listen to each other’s stories, everyone would go crazy trying to make sure they got their own problem back.”

Another friend is fond of saying about his problems (he is 84): “If that’s the worst thing I have to worry about today, I’m having a good day.”

These both came to mind this morning when I awoke with a backache. I do not know what I do in my sleep that is somehow more active than whatever I do while awake; I wish that fellow who occupies my body at night would leave me a crossed-off to-do list just to let me know.
Read More

My Shadow Knows Nothing

At once sarcastic and tender, W.H. Auden’s “The More Loving One” asks us to imagine a night sky empty of stars:

Looking up at the stars, I know quite well
That, for all they care, I can go to hell,
But on earth indifference is the least
We have to dread from man or beast.

 
How should we like it were stars to burn
With a passion for us we could not return?
If equal affection cannot be,
Let the more loving one be me.

 
Admirer as I think I am
Of stars that do not give a damn,
I cannot, now I see them, say
I missed one terribly all day.

 
Were all stars to disappear or die,
I should learn to look at an empty sky
And feel its total dark sublime,
Though this might take me a little time.
— “The More Loving One,” W.H. Auden, 1957

I might very well like a starless sky and call it sublime or subtle in its black-on-black nuance, the poet declares, and not mourn the sight of a supernova, which is after all the explosive death of a star, and I may not notice the absence of one should it simply blink out, but in all matters, “If equal affection cannot be,/Let the more loving one be me.”

In all matters attracting my human attention, be it the night sky or my beloved’s face, let the more loving one be me.
Read More