3000 Days of Somehow

I do not recall July 14, 2010, which was three-thousand and one days ago today. What is more, I left no social media footprint that day, so I do not even have any words or sentences or “Mark is feeling :-)” emoticon that I may have typed that morning on Facebook that could spark a memory.

Of course I looked. I looked just now with a grimace of anticipation on my face in the worry-slash-hope that I would find something I had written that day to someone about anything at all. Nope. (In fact, I do not enjoy looking at anything I typed before July 15, 2010, for reasons that I hope will become clear.) There is no journal entry, no blog post.
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Better and Better

A friend told me about eating out with her “sarcastic” friend—we all have one—when the two of them saw a toddler, bundled up in winter layers, bounce off a closed glass door and fall because the child had not perceived the door.

The sarcastic friend said, sotto voce, “Get used to that, kid.”

Life is a clear, freshly cleaned, plate glass door that I haven’t noticed is a door, even with a shiny metal door handle at every-door-you’ve-ever-seen’s-door-handle-height on it, because I have been too busy thinking about life (or “thinking” “about” “life”) until I bonk into it. Loudly.

When are we too young to learn that? or too old to be reminded?
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#RareDiseaseDay 2017

In 2015, when I wrote about Rare Disease Day, a friend asked, tongue firmly in cheek, “Why not have Rare Disease Day on February 29th?” I admit that when I learned about Rare Disease Day several years ago, after I was diagnosed with one, a similar joke crossed my mind.

Each year, the last day in February is the date for International Rare Disease Day, and Leap Day or not, today offers the opportunity for us to remind the world that rare diseases are not at all rare.

Today, February 28, is International Rare Disease Day, and “Research” is this year’s theme.
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